Andrew Cooke | Contents | Latest | RSS | Previous | Next


Welcome to my blog, which was once a mailing list of the same name and is still generated by mail. Please reply via the "comment" links.

Always interested in offers/projects/new ideas. Eclectic experience in fields like: numerical computing; Python web; Java enterprise; functional languages; GPGPU; SQL databases; etc. Based in Santiago, Chile; telecommute worldwide. CV; email.

Personal Projects

Choochoo Training Diary

Last 100 entries

[Computing] Okular and Postscript in OpenSuse; There's a fix!; [Computing] Fail2Ban on OpenSuse Leap 15.3 (NFTables); [Cycling, Computing] Power Calculation and Brakes; [Hardware, Computing] Amazing Pockit Computer; Bullying; How I Am - 3 Years Post Accident, 8+ Years With MS; Collaboration request; [USA Politics] In America's Uncivil War Republicans Are The Aggressors; [Programming] Selenium and Python; Better Walking Data; [Bike] How Fast Before Walking More Efficient Than Cycling?; [COVID] Coronavirus And Cycling; [Programming] Docker on OpenSuse; Cadence v Speed; [Bike] Gearing For Real Cyclists; [Programming] React plotting - visx; [Programming] React Leaflet; AliExpress Independent Sellers; Applebaum - Twilight of Democracy; [Politics] Back + US Elections; [Programming,Exercise] Simple Timer Script; [News] 2019: The year revolt went global; [Politics] The world's most-surveilled cities; [Bike] Hope Freehub; [Restaurant] Mama Chau's (Chinese, Providencia); [Politics] Brexit Podcast; [Diary] Pneumonia; [Politics] Britain's Reichstag Fire moment; install cairo; [Programming] GCC Sanitizer Flags; [GPU, Programming] Per-Thread Program Counters; My Bike Accident - Looking Back One Year; [Python] Geographic heights are incredibly easy!; [Cooking] Cookie Recipe; Efficient, Simple, Directed Maximisation of Noisy Function; And for argparse; Bash Completion in Python; [Computing] Configuring Github Jekyll Locally; [Maths, Link] The Napkin Project; You can Masquerade in Firewalld; [Bike] Servicing Budget (Spring) Forks; [Crypto] CIA Internet Comms Failure; [Python] Cute Rate Limiting API; [Causality] Judea Pearl Lecture; [Security, Computing] Chinese Hardware Hack Of Supermicro Boards; SQLAlchemy Joined Table Inheritance and Delete Cascade; [Translation] The Club; [Computing] Super Potato Bruh; [Computing] Extending Jupyter; Further HRM Details; [Computing, Bike] Activities in ch2; [Books, Link] Modern Japanese Lit; What ended up there; [Link, Book] Logic Book; Update - Garmin Express / Connect; Garmin Forerunner 35 v 230; [Link, Politics, Internet] Government Trolls; [Link, Politics] Why identity politics benefits the right more than the left; SSH Forwarding; A Specification For Repeating Events; A Fight for the Soul of Science; [Science, Book, Link] Lost In Math; OpenSuse Leap 15 Network Fixes; Update; [Book] Galileo's Middle Finger; [Bike] Chinese Carbon Rims; [Bike] Servicing Shimano XT Front Hub HB-M8010; [Bike] Aliexpress Cycling Tops; [Computing] Change to ssh handling of multiple identities?; [Bike] Endura Hummvee Lite II; [Computing] Marble Based Logic; [Link, Politics] Sanity Check For Nuclear Launch; [Link, Science] Entropy and Life; [Link, Bike] Cheap Cycling Jerseys; [Link, Music] Music To Steal 2017; [Link, Future] Simulated Brain Drives Robot; [Link, Computing] Learned Index Structures; Solo Air Equalization; Update: Higher Pressures; Psychology; [Bike] Exercise And Fuel; Continental Race King 2.2; Removing Lowers; Mnesiacs; [Maths, Link] Dividing By Zero; [Book, Review] Ray Monk - Ludwig Wittgenstein: The Duty Of Genius; [Link, Bike, Computing] Evolving Lacing Patterns; [Jam] Strawberry and Orange Jam; [Chile, Privacy] Biometric Check During Mail Delivery; [Link, Chile, Spanish] Article on the Chilean Drought; [Bike] Extended Gear Ratios, Shimano XT M8000 (24/36 Chainring); [Link, Politics, USA] The Future Of American Democracy; Mass Hysteria; [Review, Books, Links] Kazuo Ishiguro - Never Let Me Go; [Link, Books] David Mitchell's Favourite Japanese Fiction; [Link, Bike] Rear Suspension Geometry; [Link, Cycling, Art] Strava Artwork; [Link, Computing] Useful gcc flags; [Link] Voynich Manuscript Decoded; [Bike] Notes on Servicing Suspension Forks

© 2006-2017 Andrew Cooke (site) / post authors (content).

First Notes on Andrew's (Possible) MS

From: andrew cooke <andrew@...>

Date: Tue, 30 Oct 2012 18:04:18 -0300

If I sent you this link, please feel free to ignore it!  It's just a
brain-dump of information related to recent medical issues that some
people may find useful.  If you want to reply, you can so do publicly
by sending an email to the link below (which will automatically be
posted here), or by sending an email directly to me (which I will not
post).  But please, don't think you have to.  This is just like those
awful letters you get at christmas about other people's kids.  You
really can ignore it.

The Simple Version

After some weird issues over the last couple of weeks (mainly pins and
needles of various extremities, to various extremes), I was recently
diagnosed as likely (but not yet certain) having multiple sclerosis.

Unfortunately (or fortunately?) that doesn't actually mean very much.
I will go into more details below, but the short version is that how
this develops is still very unclear.  If it helps any, I am not
expecting to drop dead in the next few days, and I think there's a
reasonable chance I could live to a "ripe old age", but the most
likely result will, presumably, be somewhere in that very wide gap.

We will know more, slowly, with various tests, but, still, almost
everything is going to boil down to what actually happens.  MS
progresses in "episodes"; how often those occur is something you only
find out by living through a few.  I just had my first.  As above, I
have no idea when the next will be.  Although in a few weeks I will
have enough info to start taking drugs to help prevent occurrences.

So what "symptoms" do I have?  These are just the damage from my first
episode, and it's possible that they will recover some over the next
few weeks.  But at the moment:

 #. My right hand feels like I have been walking with it down by my
    side, and it has "gone to sleep" or is "full of blood" (I hope you
    recognise what I mean - I think it's a common feeling).  So it
    feels like it has pins and needles and it's a bit more clumsy than

 #. My feet sometimes (variable) feel like I am a little bit drunk.
    Not very - there's just some vague uncertainty when I walk.

 #. I cannot fart silently.  Obviously this is by the far the worst

The Complex Version

The disease is quite complicated: there are three separate parts.

First, there's some shadowy "cause" that is triggering civil war
inside my body.  This is what we are still trying to track down with

Second, there is the war itself.  My immune system is attacking my own
nervous system, which is not good.  In the short term, we can shut
this down with steroids.  That stops the attack (and I am full of
steroids right now).

Third, there is the collateral damage from the attack.  That gives the
symptoms I listed above.  These may get better depending on how well
the nerves recover, and on how deep the damage was (in my case, as far
as I can tell, the damage is not deep - I still have feeling and motor
control everywhere, more or less).

So what bothers *me* most is the last of these, since it is what I
feel.  But in absolute importance it's relatively unexciting.  What my
doctor cares about is the first, because that is what we want to
target with drugs.  And it turns out that the evidence in my case from
a whole battery of tests is somewhat inconclusive.  Thankfully we have
time in hand - I am so packed full of steroids that another attack is
unlikely for some weeks.

More Philosophical Points

It's natural, on hearing bad news, to think "oh my god I am going to
die what do I do?".  So I sat down and tried to think.  Cocaine and
teenage hookers?  Frankly, it didn't seme that attractive.  I guess I
am old.

When I tried to rate my priorities, all I could find that made much
sense was to try help the people I love.  My life is actually pretty
cool.  I have tried quite hard to make it mine, and I like it.  I
don't want to lose it, of course, but I don't see how to make it much
better, either.  So really, this turned out to not be such a big

I hope that doesn't sound awfully smug.  I am a lucky man, in some

Some Closing Positivity

I have been diagnosed with this relatively late in life (which is
probably a good thing); I ended up in the "second best hospital in S
America" (according to the internal newletter, which was amusingly
proud of coming second to some fancy place in Brazil); I was treated
by the head of the department and specialist in MS; we seem to have
caught this on the very first episode (it's common to mis-diagnose for
years).  So there are positives here.  Still, as my doctor says,
things are still way too wide open to make any prediction at all.

Anyway, that's all for now.  Take care.  Andrew

hope for ms

From: Mike Toomey <miketoomey@...>

Date: Sat, 3 Nov 2012 23:15:48 +0100
she seems to be saying that she recovered by paying a lot of attention to

Comment on this post