C[omp]ute

From: andrew cooke <andrew@...>

Date: Sat, 19 Jul 2014 15:26:32 -0400

http://acooke.org/cute/HowIAm0.html
http://acooke.org/cute/HowIAm20.html
http://acooke.org/cute/HowIAm30.html
http://acooke.org/cute/HowIAm40.html
http://acooke.org/cute/HowIAm50.html


Now 20.5 months from being diagnosed.  19.5 months on Betaferon.


In general, nothing particularly new.


Biggest problem has been tendonitis (right achilles), which is not a direct
result of the MS, but something I've struggled with for years, and exacerbated
by regular running (which *was* motivated by the MS - try to exercise every
non-injection day).

Physiotherapy, no walking, and reducing running distances failed to fix
things, so bought a bike to have an alternate method of exercise.  That
helped, but had to travel for work / parents which made things worse again.
Now back home and hope things will improve.  The bike is fun, but I am wary of
using even that too much.


This last week things have been weird.  I guess it's just a cycle of
re-mylenization (it could be progressive MS, but I don't really have the
cumulative evidence of things getting worse).  Random aches and twitching.
Yesterday I felt the strap of my bike helmet under the chin "for the first
time".  Today I seem to be more aware of a constriction around my chest (a
place where I've had symptoms before).

My right hand is very slightly better than before.  The best description now
is that it feels "tired" and "slightly stiff" with mild PN / waxiness in the
fingers.  Still some related numbness on the rght upper arm.

Under the thighs remains odd - an uncomfortable feeling when sitting.  I don't
think that has ever been OK.  Recently trousers round my thighs have felt
"odd".

But no clear new outbreak.  I continue to wait...


Hello to future self.  Keep on rockin'

Andrew